Stigmatisation and discrimination against persons affected by leprosy a case study of the Weija leprosarium

Abstract

The rights of persons affected by leprosy (PALs) have been violated over the years and it appears policies and measures put in place to protect them have not been working. The specific objective of this study is to determine the extent of stigmatisation and discrimination against PALs. This thesis seeks to find out the factors and effects of stigma and discrimination and how public institutions are accessible to PALs. It further seeks to determine the relationship that exists between administrators, nurses, family members and persons affected by leprosy. A qualitative approach and a case study design were adopted for the study. Sixteen (16) respondents were selected; which included PALs, administrator, nurses and family members of PALs. The analysis of the qualitative data from respondents and other related materials reveal that curse, deformity, body odour, perception about the disease, derogatory names and fear of contracting the disease were identified as major factors of stigma and discrimination against persons affected by leprosy. The study also found out that the rights to education, health and employment of PALs are denied. Apart from these, right to marriage, family, social security and standard of living of PALs have been negatively affected. The relationship between PALs and their family members is poor while the relationship between nurses, administrator and PALs is cordial. It is recommended that; counseling services should be freely provided to all PALs and their family members, special schools for the PALs have to be established by the state, independent institution for example the ‘Ghana Disability Authority’ for Persons with Disability has to be established to promote and protect the interest of members including persons affected by leprosy.